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Horror_Call_3404

Never heard of full sedation for this??? They’ve given me twilight that doesn’t do much of anything. I’m confused!


Chronically_annoyed

Man I wish I could do an AMA about my Mals experience currently 🥴 😂 the SHIT these girls are saying is just so laughable now.


Bellalea

BS that the block wore off while in the doctors office. Nerve blocks typically last for several hours and up to at least 24 hours. It’s a diagnostic test with a fluoroscopic guided injection of anesthesia. She was probably given light sedation and it can still be quite painful at the injection site during and after the injection.


noneofthismatters666

She's all in on trying to prove her symptoms from that dismissed lawsuit.


luzdelmundo

What's the thing on their glasses? I don't keep up with this one


Potatoheadheadhead

Yes, because as SOON as you wake up from surgery, you feel 100% better.


indicaindabed

with all the pain meds they give the patient i can see why someone would feel better when waking up from surgery. especially because the pain that MALS causes is excruciating.


Kita1982

One feels like crap when you just wake up from a surgery. And you definitely don't feel like eating a 3 course meal like she's claiming here.


sonawtdown

three major surgeries in one month I’m done reading next


ComManDerBG

She really has to make it clear to everyone that this was a *major surgery*. Because she's special her surgeries are the most dangerous.


glittergirl349

why do I just feel like this is an er pic with a long story


deathbypuppies_

What on earth is *neurogenic* MALS? Surely MALS by its nature is structural??


glittergirl349

#COULD BREATH BETTER


Medium_Engineer_8845

i feel like they all saw the MALS episode of greys anatomy.


mthrforkingshirtball

Why was she sedated for a nerve block? In my experience, a nerve block does not require sedation - local anesthetic, yes. But not sedation. Am I wrong? Someone please correct me if that's the case


NoGrocery4949

Most nice doctors will offer sedation because....I don't know if you've seen those needles but...they are huge and long. And you really can't be wiggling around while a block is is being performed. I've seen people give 100 fentanyl and 2 of midazolam for most blocks. That's an induction dose of those meds.


junkiehick

A celiac-plexus block is a spinal nerve block. Generally, they sedate you for that so you don’t move at all while they stick a large needle in your spine. (Edit: I don’t have professional experience, but I do have multiple family members who have had CPBs. So, they probably don’t sedate always, but the people I know have been sedated for it.)


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NoGrocery4949

...I guess it's a style thing but damn that's pretty stingy.


VastBumblebee5115

They will give a mild sedative if someone has something going on that would make them move around a lot. You need to be still when they're sticking a needle in you.


kshearules

This is gonna be a stupid question, BUT...that soda bottle looks very familiar; similar to Polar soda. (Regional fave). Wtf lol


kshearules

Polar is the brand; its from Worcester, MA. They've got amazing seltzer flavors, and all the other sodas you could want. (Grape, orange, birch beer, etc) Give em a Google. I love Polar.


VastBumblebee5115

What does it taste like? Sounds interesting


birdgirl1124

Well the one in the photo appears to be just plain seltzer. Polar makes a ton of flavored seltzer and a ton of sodas like; grape, orange, root beer, birch beer, cream soda, etc. they also make a lot of those sodas in diet as well.


culinarytiger

The cape cod cranberry is the best soda ever


glittergirl349

i’m curious too about the taste


2018MunchieOfTheYear

It’s honestly so dumb that this is the test to see if people have MALS. They can just lie and doctors have no way to prove it. But 90% of these MALS surgeons don’t give a fuck anyway.


Mysterious_Bowl_5555

So you just say it worked and eat something and ol doc gives you the chop chop? Seems medically rigorous. Also 3 major surgeries in one month?


KillerKatNips

I wonder how often they sedate and then either do nothing or give placebos to test for accurate diagnosis with patients like these.


NoGrocery4949

Never. That's completely unethical.


Mysterious_Bowl_5555

Is that ethically allowed? I don't think it is outside a clinical trial.


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NoGrocery4949

That would be a horrific thing to do to someone and anyone who does this should lose their license.


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Kita1982

Nah. Down voting is more because what you're describing is completely unethical. It sucks, but you can't say you're doing procedure A and make them sign for it and then do procedure B (which would be to do nothing) while in surgery. Same with placebo pills. Yes it has been shown it works, even if the patient themselves knows they are sugar pills. It's still unethical because they haven't given you permission for it. In a clinical trial the patient has given you permission for it and knows it's a 50% chance they get one instead of the actual procedure.


KillerKatNips

I'm not sure. Literally. I just immediately wondered if they are able to do ANYTHING to screen for deception in patients like this (if the doctor cares to avoid unnecessary procedures in the first place).


theee_last_straw

Top sub specialists can screen via a very heavy record review to even set a 1st time apptment. As much as these munchies think Mayo or cleveland clinic is hard to get in, love to see them try for places like, HSS, JHU specialty clinics or any of the high volume, but less...factory esq places like CC or Mayo.


Mysterious_Bowl_5555

I think it's not but I get what you're saying


KillerKatNips

This has made me curious. So, we know that the placebo effect is real. It's proven time and again. So, is there any setting outside of clinical trials in which they are able to use the effects to the benefit of a patient like this? If THEY believe they are getting "special, rare" medications that are benefitting them, wouldn't that be better than dismissal and have them doctor shop, increasingly upping the stakes for what medical procedures they think the require? Edit: I feel it could also help a doctor weed through the people who actually do have medical issues vs people who are faking medical conditions.


NoGrocery4949

Sure, I ordered melatonin and atarax all the time for my patients as an intern.


Mysterious_Bowl_5555

Yep that's called alternative medicine and many people find it very helpful. The hour long consultation makes them feel really listened to and the special medicine makes them feel better.


[deleted]

She brought a whole freaking picnic with her!


glittergirl349

no hospital food in sight!!🫠


[deleted]

I legitimately laughed at the Tupperware 😂


pineapples_are_evil

Digging the vintage 70-80's looking corningwear baby cassarole


tubefeedprincess99

She’s having surgery with the Dr. Who will do surgery on literally anyone who says the block works, even if their scans don’t support MALS


2018MunchieOfTheYear

Exactly. Anyone who walks into his office can get this surgery.


tubefeedprincess99

The munchies love him just as much as the love the butcher is Maryland who will fuse a neck without need so long as they pay and sign a non disclosure agreement


shesarevolution

I truly wonder how much it costs to have a neck fusion surgery- paying for that upfront has to be absolutely insane. Wonder if he does installment plans?


2018MunchieOfTheYear

Honestly surprised they haven’t formed a partnership


Evening_Practice_886

Why can doctors like these exist, I hate that this is possible


theawesomefactory

Greed is an amazing thing. Honestly, they're worse and more destructive than the munchers themselves.


Evening_Practice_886

They truly are! It’s a scary system and not right in any sense. I’m glad it’s a public system here where they’re at least under a lot of control and rules. Yes, you can go private if you want, but not to get whatever you want because you’d have to have your primary and the public system with you - and they wouldn’t give you a line or an unnecessary surgery that easily. I’m not saying it can never happen (because people are people) and we do have munchies, but you’d have to fake very well and it’s harder to doctor shop when you have to use a hospital that can see your entire medical record automatically wherever you are in the country. You can’t just buy your way to what you want. Power- and money hungry people don’t belong in healthcare, but nevertheless they’re there. Fucking sucks!


anxietywho

We can thank the privatization of the healthcare industry for that.


Evening_Practice_886

Yeah for real! Such a difference from our system. It’s just ugly!


Dinosnorie

Isn’t this a pretty last resort kind of thing for people with advanced pancreatic cancer


janet-snake-hole

This is actually one of the only ways to accurately diagnose MALS


PepRD

The nerve block is actually a very effective treatment for pancreatic cancer-related pain and GI symptoms. It’s relatively straightforward, no systemic sedation needed, and doesn’t need to be done in a hospital (usually same day surgery center/advanced clinic settings). The surgery for MALS that she’s talking about about having in the future is what’s invasive and inconsistently effective for MALS symptoms. What seems like a more reasonable next step after this nerve block would be the same procedure, but using a medication that breaks down nerves (neurolytic). This would give a much longer lasting result similar to the relief she claimed after this diagnostic block. My hunch is that she’s munching past the nerve block and claiming relief because she discovered that it’s the ticket to complex, ~rArE~ MALS surgery.


PepRD

She wasn’t diagnosed with MALS until she had the diagnostic nerve block just now? That’s not how MALS is diagnosed. It’s a predictor of outcomes for a surgery performed for MALS, but the response to the nerve block is not the way that MALS is confirmed. Like another poster said, I’m betting on a placebo effect. Better yet, she’s bullshitting about the supposed relief of her “symptoms”, and has just munched her way into a major surgery. Noice.


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CatAteRoger

Please take the time to read our sub rules, the first one is No Blogging which means we do not discuss anything personal about ourselves or anyone we may know and especially no mention of any illness issues, thanks.


1avender1emonade

So the way it should be done is an evaluation of symptoms and confirmation of anatomy on scans for a diagnosis. The block is so you know if the surgery could potentially provide any benefit. Plenty of people have “mals anatomy” but only a small percentage of those people end up with nerve damage requiring surgery. The block is not necessarily a diagnostic tool.


herefortherealitea

I came here to ask a similar question. A lot of people get celiac blocks for pain relief but I highly doubt all of them have MALS? It just seems very convenient.


valleyfever

If it's not munching it's placebo


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valleyfever

I'm not questioning the legitimacy of the procedure


NoGrocery4949

Celiac nerve blocks are not a placebo treatment. This is not a good thing to say. Many people get serious relief from cancer pain with a celiac nerve block.


valleyfever

I meant for her specifically. I'm not questioning the procedure


TakeMyTop

what are those glasses she has? do they do something special?


Naive-Travel-9589

They look like she'd DIY'd them with a sharpie. Limiting the field of vision can be helpful for people who've had certain types of brain injury, since a narrower field means fewer signals for the brain to process, making it easier to see because the brain doesn't get overwhelmed and confuse signals. However the only glasses I've seen that can be prescribed or purchased for this purpose are blacked out all around the lens, with a circle in the middle, rather than in the inside corners.


NotEnuffCowBell

Possibly prism frames, used for certain corrections. I've seen them used with people who have thyroid eye disease due to graves.


widefeetwelcome

I have the same question. She looks a little cross-eyed. Maybe to correct that?


claradox

Right before a hysterectomy?


FireBeyond

“Typically my body has the opposite reaction to steroids”. Huh… okay.