T O P
Rabidlamb

How did they confirm your T1, were you tested for antibodies & c-peptide ? As I'm sure you're aware there's a honeymoon phase in many T1s who are diagnosed early. That's a nice graph btw


Can-I-remember

Was coming in to say nice graph myself. Those little breaks annoy the hell out of me though. Surely they could get it out to a ten hour window. People need to sleep after all.


shitshowsusan

I’m a LADA type 1. My pancreas works on and off. Take the break when you can get it! But I understand it’s frustrating.


melancholalia

from what i understand... a type 1 misdiagnosis is rare. \- you're in your honeymoon phase. this is a period time after diagnosis where your pancreas is still producing—or maybe even producing more, in response to more balanced BG levels (i dont know the medical science behind it lol)—insulin. it's not uncommon for people in their honeymoon phase to need dramatically less insulin than they eventually will. \- if you weren't diabetic, you probably wouldn't be having spikes up to 10mmol. a quick google search shows me that's somewhere near 200. i wouldn't consider that controlled if you're spiking up to that level. \- diet and exercise \*do\* help with type 1 control as well, so my best guess is you've greatly increased your insulin sensitivity from exercising, therefore needing much less insulin from your (i'm assuming) low carb diet. i understand hoping that the diagnosis is wrong, but when you're diagnosed with type 1, they do more than just check your blood sugar. but, of course, as always, this is a conversation worth having with your endocrinologist.


ponzao

Quick spikes often end up being exaggerated at least by Libre.


GillyGoose1

>if you weren't diabetic, you probably wouldn't be having spikes up to 10mmol. This part specifically stands out to me, as this hasn't been the case for me through years of experimenting with close, non-diabetic friends. I've witnessed their BG climb as far as 11mmol before swiftly coming back down - the cause of such a rise is often a very carb heavy meal (big bowl of pasta for example). We don't actually know if OP had eaten something or not prior to this rise, but if he had, I wouldn't completely write off OP being misdiagnosed due to a 'high' of 10mmol only, could be totally normal.


melancholalia

i could be very wrong in that case! i thought that non diabetics do experience post prandial spikes but nothing higher than 120/130 before going back down. yeah, i guess just that chart alone isn't enough to go off of, but the fact that a doctor diagnosed them in the first place tells me it's probably correct as (iirc) they test for more than just blood sugar levels.


Rabidlamb

Wha ??? Healthy non-diabetics spend 30 mins a day >140 [https://www.diabetesdaily.com/forum/threads/a-study-where-153-non-diabetics-wore-a-dexcom-what-truly-normal-looks-like.137801/](https://www.diabetesdaily.com/forum/threads/a-study-where-153-non-diabetics-wore-a-dexcom-what-truly-normal-looks-like.137801/)


melancholalia

yeah but like up to 200? i could totally be uninformed though


Rabidlamb

It's scary what CGMs are only now revealing in non-diabetics [https://live.staticflickr.com/1832/28943375057\_935a277117\_h.jpg](https://live.staticflickr.com/1832/28943375057_935a277117_h.jpg) I suppose with so few of the population being metabolically healthy & the standard western diet it only leads one way


Sprig3

Yeah, hard to say from OP's chart as CGMs aren't perfect. CGM data from 153 normals in this study [https://academic.oup.com/jcem/article/104/10/4356/5479355](https://academic.oup.com/jcem/article/104/10/4356/5479355) All of them spent some time above 140 (a small amount, though, averaged 2.1% of the time above 140). Most of them spent at least some time above 160 as well, but very little (0.3%, that's less than 1 number per day) Given that the CGMs used could have been off a bit, it's hard to say for sure. If they'd been 20 off, maybe they did stay around/below 130 \*shrug\*.


___Dan___

Never had a physician tell me that spiking to 200 is a sign the condition is uncontrolled


melancholalia

no no, not what i meant at all. but OP was saying that without insulin their BG has been "more controlled than ever" and asking if that was evidence they aren't type 1. and i meant that i wouldn't call spiking to 200 controlled without insulin in this case. just meant for them specifically in this instance.


silvermoon26

Enjoy your honeymooooooon!


toterra

You are going the honeymoon phase. Basically your remaining insulin producing cells were burnt out when you were diagnosed. After a month or so of insulin therapy they have recovered and are producing insulin again. Unfortunately your immune system is still killing them and it won't last.


mystisai

13 years diabetic and that will happen to me occasionally. Then after the insulin fully wears off, I will have a week of bad numbers as the tresiba doesn't seem to work as well the first few days. Usually it's due to hormones or something. I do not recommend doing this on purpose because of the rebound.


Optimal_Hedgehog622

Off topic but I recently switched from levemir to tresiba. And Tresiba has been a game changer for me, with levimer, it would quit stabilizing around noon, I take my long lasting at night, and I would feel the ketones kicking in around 2pm. Now, I can actually miss a meal and not have to worry about my blood sugar skyrocketing because of it.


mystisai

Tresiba has been a game changer for me too. Mostly because it lasts so long.


lazydoctor124

Were you on a once daily dose of levemir? (:


Optimal_Hedgehog622

I sure was, later learned your supposed to take half and half later. But I'm still on needle and vile. So I just took it once a day.


AeroNoob333

Love Tresiba!!!


Tiirso

I am lucky to have a LADA diagnosed endo. When she first diagnosed me, during honeymoon period, I was on 3u of Toujeo. Unfortunately, pancreas has shut down insulin production so now I am on 20u os Toujeo plus bolusing meals. It is probably best to not overcharge your pancreas, keep using long lasting insulin and adapt diet and exercise. I have a friend that manage to keep his honeymoon period for almost 8 years, going almost full keto and doing lots of exercise.


um_rr

Wow that's awesome for your friend! Any other tips he gave to extend his honeymoon? Dxed last year and trying my best to prolong it as long as possible :)


Tamick68

Classic honeymoon phase...went through it when I was dx in 1979.


02_Lens-Hood

In my case I came up being a LADA as well as 1.5, still had some pancreatic function. My endocrinologist at the time said that honeymoon period would last a few weeks. That was 5 years ago. The takeaway is diabetes is a tough difficult disease. Take the good news as it comes, do your best, that’s about all anyone can expect. This forum is very helpful. Best to you.


AeroNoob333

Oh wow! Is that without long acting also? I can’t seem to get away without long acting insulin because my baseline sucks to begin with, but I can get away without using fast acting insulin especially like the week after my period starts. I’m just super extra insulin sensitive that what little insulin I’m making in my honeymoon is more than enough. I’m not necessarily low carb either.


Prometheus2061

I have been Type 1 for 37+ years. When I was a young man, I did have a honeymoon phase. Diet and exercise, plus residual insulin production by your remaining islets, can result in seemingly normal glucose readings. And A1C was never better. But I doubt you have been misdiagnosed. I assume you have a board certified endocrinologist. Consult with them. Reddit is not the place to get medical advice.


saltedtaffies

Honeymoon phase. Mine lasted 4 months shortly after diagnosis at age 11.


minikraslik

Bro don't believe it, promise me I did literally the same, first of all I stopped applying my night(slow) insulin and then I also stopped applying my day(fast) insulin and my blood sugar was stable like this... After a few weeks I was getting worse and worse. Before I had like the best blood sugar ever I can imagine, and after this stupid thing it was never the same, it just kept getting worse. Now I dose like 3x more insulin then before because of this "experiment" I like to call it. Promise me, that you'll apply ur insulin again.


APO_AE_09173

Talk to your medical provider. If indeed you have some pancreatic function that would be awesome. Do Not risk self diagnosis.


anonymiz123

Are you following up with a blood glucose monitor to ensure accuracy?


hikerockies

This happened to me a little while after diagnosis too. I had a few instances where i didnt need insulin for 2 or 3 days in a row, but I was exercising a ton. Things have stabilized a bit now (4 months since diagnosis). I have to take more insulin now, but it's more consistent and so easier to manage. I suspect it was a combo of exercise and honeymoon. Endo thought so too, but sadly no way to know for sure


GimmickInfringement1

This is possible because you're in the honeymoon period, which means that your pancreas is still producing insulin at a sustainable level. Diet and exercise are great facets to maintain, but never forget about your medication. It's okay to skip a dose every now and then for now as long as you're VERY strict about your activity and dietary restrictions, but your insulin is also very important


azaz466

You are in your honeymoon! That is a common stage for TD1! Do an autoantibody test plus Cpeptide test to find out if you are for sure type 1 diabetes or not?


Luke_hs

80% chance you are in the honeymoon phase, they do antibody testing and that’s how they diagnose. This is exactly where I was a few weeks ago. I was convinced I was fine because I would eat and stay in a somewhat normal range. I was diagnosed in July, the honeymoon phase starts shortly after diagnosis or a few months after.


wind_dude

honeymoon phase? I was close to 0 fast acting insulin when I started Keto for about 2 weeks, but was still on ultra-long acting. Talk to your doc/endo.