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Have any women here gone through pregnancy with chronic illness?

Have any women here gone through pregnancy with chronic illness?

text-editor

Yuuuuuuup. Ankylosing spondylitis here. I’m 24 weeks along and while I’ve had a couple of flares, I’ve survived. AS doesn’t necessarily affect my weight, though, which sounds like it could be an issue for you. I will say I’m not gonna do this again though. Was your gyno just like “you can’t have kids”? Because it might be worth seeking more info or a second opinion: what specifically will be hard or impossible—conception, labor, something else? If you have that info you can at least figure out potential approaches.


MrsStewy16

I have Polycystic Kidney Disease and I was diagnosed with it about a year before I got pregnant. My son was born at 33 weeks because my body was literally shutting down. I had low platelets and hemoglobin and elevated liver enzymes. I had to have an emergency c section under general anesthesia. I was told I shouldn’t have more kids because I could die if I did. My son is now 16 and I had my tubes tied.


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Wow that’s terrifying! I’m glad your alright after all that and don’t blame you for getting your tubes tied


LittleGinge79

I did. At the time I was 24 and had been diagnosed with Fibromyalgia for 6 years. It was tough at the end, but for the first few months I felt better than I had in a long time.


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That’s awesome thanks <3


Kriz-tuhl

I have HSD or hEDS most likely (geneticist the 4th) or possibly a systemic autoimmune disease and carried twins full term. I was on bed rest most of the time and had a hard time walking towards the end but everything went great. I also have issues with probable gastroparesis (was super mild symptoms back then Though) and reflux. What’s your rare stomach issue? Does it make it unsafe to have another baby or is that just your gynos opinion? What about a second opinion? Edit: also, my sister just had a baby at 40. She went through so much and may have permanently damaged her body. She had no health problems before. Age plays a factor too for sure.


AnnaF721

Chronic migraines and diabetes. I adopted my second child.


who_am-I_to-you

Your conditions don't make it impossible for you to have another pregnancy, but it can put you at serious risk during pregnancy or during birth. I have POTS and GERD, just those two alone made my pregnancy extremely difficult and I had a lot of hospital visits. I'm not sure if my GERD had anything to do with it, but I had hyperemesis during my pregnancy. So my low weight and stomach problems that caused me to be unable to eat made things difficult. I was put on bed rest for the last trimester because my blood pressure was very low and I couldn't stand for long without fainting. I also ended up being severely anemic after giving birth because of my lack of proper nutrient/calorie intake. My daughter was and is completely healthy though.


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Wow that’s rough I’m sorry you had such a hard time with it,it’s scary enough dealing with this stuff but even more stressful with a bag growing in you. So glad your daughter is ok but how are you now? Did things get much worse after birth?


who_am-I_to-you

So after birth it seemed like my GERD and POTS symptoms were worse than they were before getting pregnant. It took about a year for everything to go back to normal. I'm doing great now and back to my baseline!


SakCommander

It might be more difficult for you to conceive while underweight, but certainly not impossible. Best advice is don't count out ever being pregnant and find yourself a good ob.


thunbergfangirl

What kind of medications do you take, OP? That’s often an important part of the decision making process.


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Hi I’m currently on 600mg of gabapentin a day,10mg of celexa and still on birth control. Recently just went back on my omeprazole for my gastritis which I had actually taken throughout my last pregnancy with no issues but did have to wean off the celexa. So unfortunately I know I’d have to get myself off the gabapentin and celexa. I’ve tried hard to keep the doses of those medications low so that if I ever did have another I’d be able to get off it easier(hopefully).


thunbergfangirl

Thanks for sharing! I take similar medications for my fibromyalgia/autoimmune disorder pain. 75 mg Effexor once daily, 50 mg pregabalin twice daily. Then because of my inflammation I also take 500 mg Nabumetone (prescription NSAID) twice daily. On top of that I usually take 3000 mg acetaminophen. It is absolutely possible to stop the Celexa and the Gabapentin, I just worry about you being in a lot of pain! I was talking to my doctor about this exact issue last week and he said that opioids at a low dose are technically safer than gabapentin/pregabalin class meds during pregnancy. Unfortunately in the “ideal” pregnancy I have been told I basically could only take a little bit of acetaminophen. For me that’s pretty rough because I know I wouldn’t be able to walk around with my usual meds. But maybe it could work for you! I highly suggest seeking the advice of a Maternal Fetal Medicine specialist. This is exactly what they’re trained to advise people on. I am rooting for you. I know just how hard it is to confront this issue. You’ll be in my heart.


HKtx

I have fibromyalgia and am almost 37 weeks pregnant currently. It has been hard and painful, but it’s also the most magical experience I’ve ever had thus far. I have SPD which makes walking and things like getting dressed rather hard. I also just found out I have sudden high blood pressure so I will be induced at 37 weeks on Tuesday. It has been uncomfortable and bothersome a lot of the time, but I know having my baby girl will make it all worth it. Ultimately, the decision is up to you. It is entirely possible to carry a healthy baby to term, even with chronic conditions. I think having the right OB/gyn and necessary supporting services like a nutritionist and a gastroenterologist will also ensure you’re covering all bases.


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Thank you I wish you well with everything and you are so right that having them in the end is what makes it all worth it,I don’t have a nutritionist but do have a gastro dr and neurologist. Although I’ll probably be looking for a different obgyn just to get a second opinion